Friday, August 7, 2009

I despise waiting!

Ok, so yesterday Lucy and I got up at 0'dark hundred, and drove downtown for her PET scan. She was so nervous, and so we talked about it again in SpongeBob terms. (Yes, I am ashamed to admit that my kids are SpongeBob nuts! But I'll blame it on Ryan, since he is too!)

So, in short, we talk about her bad tumor being Plankton in the Chum Bucket, and how he is trying to take over Bikini Bottom (her brain), so we have to keep an eye on him, and see what he is doing. That always seems to help her feel better about it.

We get there, check in, and wait. When they call us back and put her in a chair to draw blood and inject the fluoride/sugar concoction - she starts crying and looking up at the poor tech, saying "Please, please don't do this to me.....please stop". He had only put the rubber around her arm at that point. It was so sad! That part only took about 5 minutes, then she had to sit quietly for 45 minutes. She feel asleep. They woke her up, and the scan only took 10 minutes.

We drove home, and then back downtown to meet with the neurosurgeon, Dr. Boggan. Last time he took almost 2 hours, to come in and see us for 90 seconds (literally). This time, we got right in, and he came right in. He was looking at the PET scan, and it hadn't fully uploaded from the hospital yet - so he couldn't see it all. He said we would do another MRI in October, and that he would have to call me with the results from this PET scan after he got the full report and file.

On a preliminary note - he said that he tumor he was looking at wasn't looking bad so far - so it was good news. However, the other side of her brain was lighting way up - so he didn't know what to think of that until he had the full report.

So bottom line, what was supposed to clear everything up - just made everything more confusing, and we are still playing the waiting game! Yuck! If I don't hear from him by next Wednesday, I am supposed to call him to get the update.

So sorry...but you are all stuck playing the waiting game with us!

1 comment:

Jess said...

Give Lucy a big hug from us. And one for you, too!