Sunday, May 27, 2012

The answer is No :-(

So we went back to SF for a few days, to have another scan done, and see Mom's doctor.  After taking it to the Liver Transplant Team, they have decided to give an absolute no for putting Mom back on the transplant list.There reason her doctor was still fighting to get her back on the list, despite her issues that prohibit her from being on the transplant list were as such.  He said that the care that Tanya and I have given to Mom is off the charts incredible.  He couldn't believe how well she was doing for how low her numbers are.  He also said that the cancer invading one side of her liver was still pretty much the same as three months ago.  Also, her liver and kidneys are functioning very well still.
The reasons he couldn't get the team to even give her more time, or another chance was two fold.  First of all her weight is way too low.  Her BMI was below the allowed amount.  Secondly, there is a second tumor, that is in the other side of her liver.  That tumor was small and not doing anything, so they just ignored it before.  However, now it has grown, and is becoming active.  It is still fairly small, but with the growth and activity, combined with the other tumor being an invasive cancer (as opposed to a single mass) is what kicked her off permanently.
They said that there is no way of knowing how long she has at this point, because doctors can always be wrong in these situations.  So it could be as long as 6-12 months with good care and Mom doing all she should.  Or it could be as short as a month or two.
Mom is doing fine with the news, and her biggest concern is when she can begin eating what she wants!  The problem is that the worse her eating habits, the faster she will decline.  She has agreed to stick with her eating plan at least for another month, until we have our trip to Disneyland at the end of June.  After that, we will see what happens.
I will keep you updated - and again, thank everyone for their love and support through this roller coaster we have been on.  And a huge thank you to everyone who offered to let us use their donations for Mom's continued care and funeral plans.  She wants to have just one graveside service and be buried in Grants Pass, OR.  We have already begun to get everything in order, and are getting as much of that paid for as possible right now, which wouldn't have been possible without your help!  Thank you, thank you!

1 comment:

★ThE mAd HaTTeR★ said...

Debbie, I hope you know how sorry I am that you are losing your mom. I remember her being a really nice lady to me :) You are such a wonderful daughter for taking such good care of her! You will be so blessed for your sacrifices!
Its a real blessing that she has come to peace with it all - at least thats how it sounds. I hope you guys get to spend the holidays together one last time.
Take care of yourself! I think you deserve a massage or something! Let me know if there is anything I can do for you guys from here.
Love you so much!
-Crystal