Wednesday, May 25, 2011

Can't sleep (yet again!) :-}

Well, yet another night that I can't sleep. I'm sure I will be sorry I've been up so long when the kiddos starting waking up for the day! :-) I decided to come down over 2 hours ago and work on some bookkeeping, check email, and thought I would take the time to do a quick update on everyone. There isn't really much to update - but I keep getting emails asking - so here's the scoop:
Mom: She is currently at my house, and now can put 50% weight on her leg, as long as she isn't hurting (that is new as of yesterday at therapy). She will still have weeks of living with us girls, and her computer isn't working again! If you aren't sure where she is and are looking to get ahold of her, just email me. She is on the transplant list, but not active - pending her getting a clear report on a lung infection (too hard to tell if it is from years ago, and just scars, or current). She wants to be home, but other than that, she is doing well.
Lucy: She is amazing. We are down to therapy 2x a month, and her most recent MRI looks like they got it all! YAY!! She still has residual "weak ankle", and we are hoping that therapy and time heal that. She is now brace free - double YAY. Still watching the tumor on her brain stem - but now we don't have to go back for another MRI for 6 months. Next week is the end of 4th grade for her.
Emmie: Don't remember if I wrote about her abnormal EEG's - after her strange episode in September 2010. They can't pin it on anything, so they did an MRI - which came back normal, which is fantastic! Still don't know why the EEG's are abnormal, or what the cause is of her seizure/numbing - but they are pretty sure it will pass, and that it isn't Epilepsy. Also, she has pretty much received all the money for her Ambassadorship to Australia this July. Now she is just fundraising for her spending money, and to buy the Thank You gifts she is supposed to bring to hand out to everyone in Australia (i.e. - tour guides, home stay family, motor coach drivers, etc). This is her last week of 7th grade homeschooling (which we are both excited about), and her last meeting, including her big project for the Ambassadorship is this Friday night. A huge thank you to everyone who has helped her with this trip. I will do a separate blog about all those wonderful people (although it scares me a little, because I don't want to accidentally leave anyone out).
Abigail: She is gorgeous! Head to toe, model gorgeous. She is finishing 1st grade next week. She is still "feisty" as ever, with total Princess syndrome - but that is good, I've realized. At one point, she asked me what was wrong with her, because she didn't need therapy like the other three were doing at the time. I explained that therapy was good for Em, Lucy and Nate, but it was also a good thing not to need therapy. She lives her life dancing around, singing, and coming into bed with me for snuggles every morning before she gets in the tub with Lucy.
Nathan: "How do you solve a problem like (our Nathan)? How do you catch a cloud and pin it down?" Familiar lyrics - completely fit him. He is finishing his half day preschool next week, and hoping to do all day preschool next school year (starting in August). He is still as the song says - wonderful, silly, crazy, difficult, loving, or as some put it "All Boy" - so true, so true.
Esther: She is almost 19 months old, and everyone loves her. For all the crying I did when I found out I was pregnant with her - we wouldn't trade her for anything. We always tell her "How did we think we could live without you?" She is especially close to Emmie (Me-Me) since she was the one caring for her while I have been gone off and on lately - as well as Em being home everyday since I home school her. Esther loves signing, and uses more signs than words. She can see a sign once, and starts using it. She is so smart!!
Ryan: Is crazy busy with work right now, which has been a huge blessing that we can pay the bills - but we never know when he is coming or going, and when he is home - he is usually in the office editing. He has started playing "Pickle ball" at the Hulbert's house, and loves it. So much that he started a "Pickle ball Diet", and has lost almost 20 lbs so far.
Me: Same ol', same ol'. My memory is gone - I can't remember things from one day to the next, so I am a loony bird - but loving my family and grateful to God for blessing me as he does so immensely.

No comments: